11 May 2010

Blog Post

It has recently been brought to my attention that I haven't posted a blog in a while.  (Though...this person...who for privacy reasons I shall refer to as Shmristen, admitted that she didn't read the last one.) it is.


This concludes today's blog post.

P.S.  I love you Kristen!  Oh shoot...I mean...uh...Shmristen....

08 May 2010

Not Alone

Today was a pretty long day.  I traversed back down to the good ol' Butler University campus today (with the help of my wonderful chauffeuring father) to attend Melissa's graduation ceremony.

So...I got up at 5:30 am.  I'm not complaining though.  It's more than worth it to go see Melissa.  She's worth everything and more to me.  Anyway...I got up early, went back down to Indy, and listened to a lot of people tell her in an extremely erudite fashion how she should keep reaching for the stars.  Anyway, after graduation, my dad and I went to Fresh Market to buy some capers for my mother (I assume to make marinated asparagus for tomorrow's Mother's Day dinner at my Aunt Betsy and Uncle Rick's house).  After that we joined Melissa and company at Buca di Beppo for dinner.  It was lovely to see her reach this mile marker in her life.  I was so honored to be a part of it with her.

Though the blessings of the day definitely way out the problems...due to part of this post, it's important to note that today was a pretty bad pain day.  I think I was able to hide it pretty well (I think) but I know Melissa noticed (she always does) and my dad could tell too of course.  Anyway...the point is, by the time I came back up North, my pain was still pretty bad. keeping with the commencement addresses (NEVER, NEVER, NEVER, NEVER GIVE UP) I kinda just started browsing around on the internet looking at alternative forms of pain management.

Honestly, part of me wonders if medical marijuana would be a good option to try...but seriously, how do you go about asking about that?  HaHa. " pain is pretty unbearable sometimes, Doc.  What do you think about weed?"

Anyway, I looked it up, just for kicks, and looked up other herbal stuff...and then ended up looking up Congenital Myasthenia Gravis (one of those things that just makes me one of a kind) AND herbal remedies.  You that old way to search things on Google.  Anyway...I ended up running into a handful of blogs of people with CMS (Congenital Myasthenic Syndrome...which I think they are calling it I think it's a group of them) and parents of children with the disease.

I ran into one in particular that really touched my heart.  Luke and Congenital Myasthenic Syndrome.  I sent the mother an e-mail.  It's just nice to know that I'm not alone.  I mean I know that I'm not alone....but it's nice to know.  I'll never forget the time I got out of one of my surgeries and found out that a girl with CMG had just moved out of the hospital from across the hall.  I was so devastated at the time (part of me still is) that I didn't get to meet her and ask her what her life was like.  I believe she was college age, as I am now, and I wanted to ask her so many things.

Anyway...that pain's still there...and the internet isn't working as a really great distraction.  Hopefully Betty White hosting Saturday Night Live will help.  HOW COULD IT NOT?!

So yeah...I'm signing out for now.  Just wanted to throw all of that out there.

P.S.  I got weighed at my GI specialist in Indianapolis on Wednesday and I am now back below 150 lbs at 149.6!

Peace out kiddos!